(For those unfamiliar with Kurtzke's Expanded Disability Status Scale or EDSS, you can view the information here: http://www.mstrust.org.uk/atoz/edss.jsp)
MS EDSS 6.0
is where I am at present
with rollator and power chair
their cherry red, resplendent
I may remain for years like this
but there’s no way to know
I wobble at a precipice
a slippery slope below
(and know from watching lives of friends
how far down it can slide)
so, lessons learned from brutal truth
have taught me to abide
within this moment’s boundaries
without a cure in sight
Insurance Co.’s and Big Pharma
too rich to do what’s Right
I’m just an aphid to their ants
though tended not as well
they’ve no plans to give me a chance
so, only time will tell.
Barb Robinson
4/23/2014
MS EDSS 6.0
with rollator and power chair
their cherry red, resplendent
I may remain for years like this
but there’s no way to know
I wobble at a precipice
a slippery slope below
(and know from watching lives of friends
how far down it can slide)
so, lessons learned from brutal truth
have taught me to abide
within this moment’s boundaries
without a cure in sight
Insurance Co.’s and Big Pharma
too rich to do what’s Right
I’m just an aphid to their ants
though tended not as well
they’ve no plans to give me a chance
so, only time will tell.
Barb Robinson
4/23/2014