Wednesday, April 23, 2014

PRECIPICE

(For those unfamiliar with Kurtzke's Expanded Disability Status Scale or EDSS, you can view the information here:  http://www.mstrust.org.uk/atoz/edss.jsp)



MS EDSS 6.0

is where I am at present
 

with rollator and power chair
 

their cherry red, resplendent
 

I may remain for years like this
 

but there’s no way to know
 

I wobble at a precipice
 

a slippery slope below
 

(and know from watching lives of friends
 

how far down it can slide)
 

so, lessons learned from brutal truth
 

have taught me to abide
 

within this moment’s boundaries
 

without a cure in sight
 

Insurance Co.’s and Big Pharma
 

too rich to do what’s Right
 

I’m just an aphid to their ants
 

though tended not as well
 

they’ve no plans to give me a chance
 

so, only time will tell.


Barb Robinson
4/23/2014