Wednesday, April 23, 2014


(For those unfamiliar with Kurtzke's Expanded Disability Status Scale or EDSS, you can view the information here:


is where I am at present

with rollator and power chair

their cherry red, resplendent

I may remain for years like this

but there’s no way to know

I wobble at a precipice

a slippery slope below

(and know from watching lives of friends

how far down it can slide)

so, lessons learned from brutal truth

have taught me to abide

within this moment’s boundaries

without a cure in sight

Insurance Co.’s and Big Pharma

too rich to do what’s Right

I’m just an aphid to their ants

though tended not as well

they’ve no plans to give me a chance

so, only time will tell.

Barb Robinson